Wednesday, 30 December 2009

2009

2009 never went really how I hoped. At one point it seemed worse than any nightmare, then it got better than I could have dreamed. It's a year that will stand out for me. Even the most frightening negative can lead to fantastic positives.
One word shook me to my core, 'incurable'. Later I found out I've a really good chance to get out and live. MS is strange it's not the same for everyone. It could turn into a real nightmare, but there is nothing to be gained by thinking about that. I've done the bit, scaring myself with what I found on the net. There is also all the miracle cures etc. I could spend a fortune for nothing. The simple fact is the best thing to do is try to stay fit and healthy and not let what might happen get me down. I'm lucky and it would be great if it stays that way.
I guess the vast majority of people will never understand how I enjoy myself. It's documented on this blog and the only explanation I can give is, that's me. It's probably very mundane and boring. Wandering round different places, shopping and drinking lots of coffee.
The real highlights of the year have been seeing my friends in Manchester and Newcastle. and another friend finally achieving her goal.For everyone I hope 2010 is a fantastic year.
I will make no resolutions. There are places I want to go and people I would love to meet. I did have plans for 2009, but they got waylaid.
I have a lot clearer view of what I want to do and also what I can't do. Things don't quite seem to ever work out as planned, but it can be even better if you react positively to the unexpected. It doesn't always work, but it's worth a shot.
One thing I developed in the last few months is a love of flowers. I think it stems from when my eye went bad.
When it started healing, looking at plants and their flowers was a good way to see if my colour vision was improving and if I could distinguish different shades.
The picture below of Canal Street in Manchester is a representation of how bad the sight in one eye got:-

The eye is much better now, for which I am very thankful. I guess now I've got new things to draw, which is hopefully all that will end up on the Limbo blog. It would be great if the MS fades into the background, but what will be will be.

Things I've heard or have been said to me include:-
"You look like my mother."
" You look like my granny"

"Do you just like dressing up,"
"I'm bisexual when I have cocaine, do you want some?" Needless to say I  politely declined..
"Look there's another, I told you we would see another one.."
"You've been spotted.." The security in a well known department store when I was trying to find a shop assistant.
That's a few I can remember, but on the whole I've found people to be ok and the majority I spoke to very nice. The one sad thing I've noticed is drugs being dealt more openly in the Village in Manchester.
One thing that gave me a bit of hope was when I was on a train from Blackpool with a load of students returning home from a conference and my gender identity wasn't even asked about when we were talking. I found that a few times during the year and it wasn't because I pass as a female. There are some people who just don't see it as an issue and treat you as another human being.

I hope I can continue on with what I've enjoyed this past year into 2010.
One last picture I guess sums up what I seemed to do a lot of in 2009,




It's certainly been a lot of fun and hopefully I'll get out a lot more.
To finish the link below is a song by Eric Johnson that I listen to a lot. I've posted it before, but it's well worth putting up again.
YouTube - Eric Johnson - Battle We Have Won
Wishing you all a Happy New Year.
Karen xxx

Tuesday, 22 December 2009

YouTube - Santana Marathon - All I Ever Wanted (Live)

Thought I'd finish this year on this blog with an upbeat song from Santana.
It's been a strange year, I guess I  won't forget 2009 in a hurry. I know it's a bit early to be going on about another year over, but to be honest I would just like to get this holiday season over. If I remember rightly and got the dates right, the shortest day of the year has passed. The days now will start to get longer and we head towards summer. I always think that is worth celebrating.
Next year all I hope for is stability, I did once look forward and hope the new year would be a better one than the last. Now as I've said before it's just day to day. Perhaps next year will be better, but then again this year hasn't been to bad. I've had some wonderful unforgetable moments for which I  am very thankful.
For anyone who reads this I hope you have a Happy Christmas and the New Year is at the very least kind to you.
Take care and look after yourselves.
Karen xx

Edit:-
I've kind of being trying to see what I'm still capable of. I know I'm a lot weaker than I was a few years ago and since the MS I've been sort of testing myself. A bit silly I know.
I had to do a bit of a heavy lift job and decided not to ask for any help and completed it myself. I took a bit longer and I did feel a bit dizzy at one point.
I feel good and no ill effects and I have no idea why I've posted this here.

Tuesday, 15 December 2009

This Years Final Trip Out

My final time out this year was a wonderful time for me. A Christmas meal with wonderful friends. A trip to the theatre. Travelling city to city again Quite a bit of dancing and meeting some interesting people some who didn't even blink twice when  speaking to me.

Wednesday Christmas Meal (The Village Manchester)

Kate and Mrs K had organised the Northern Angels Christmas Meal and what a great event it was.
I had got to my hotel room in the afternoon. My friend Diana was arriving a bit later staying in the hotel just down the road.
I had plenty time to get ready, but ran into what good be described as a bad hair moment. It ended up Diana was ready before me and when she called I was probably in a bit of a panic. She came round and calmed me down and I got my act together and finished getting ready.
We went off down to Velvet where we were having the meal. We met up with everyone it was fantastic to see Kate, Mrs K , Kay Denise, Amanda, again and meet Cathy and Mrs C and there was another couple who's names escape me. I sorry to say I'm terrible at remembering names. I really enjoyed the meal and the wonderful company. For me this was Christmas.
One downer was two students not from Manchester I might add came right up to me when I was out having a smoke and said, 'Look there's another one, I told you we would see another one'. I just shook my head with a disgusted look and said 'F@%k off.. They soon took off. Lucky for them I'm quite easy going, but one of these days if they keep that up they might get more that they bargained for.
After the meal we went to Naps for some dancing to round a wonderful evening off. Diana was struggling a bit with bruised ribs she had suffered a few days before.
About 2am I left with Kate and Mrs K.

Thursday (First Trip to the Theatre)

Thursday morning Diana and myself went shopping in Manchester and we went to the Palace Theatre to get tickets for the Rocky Horror Show. Now I must admit I was a bit dubious about going.My first wife loved the music and the film so we rented it one night. The music was ok, but the film made me feel a bit uneasy. It just seemed full of every cliche going and stereotype. A Few months later I  came out to her and it didn't go well. we ended up divorcing, but in the end it wasn't me being transgender that ended it. It would have ended eventually. There is no point going into details, but it ended amicably.
After getting changed and a early meal in Taurus we made our way to the Palace Theatre. Now I would say we were quite well dressed. I was actually wearing a nice dress for a second night in a row. Unusual for me. Most of the time I wear jeans and a top, but it is nice to get dressed up.
When we got to the theatre it got a bit surreal. A lot of women dressed as french maids and men dressed in basques and stockings. When we got inside I think we confused a few people. A mother and daughter sitting in front of us started chatting to us and started to compliment us on our costume and realised we weren't dressed up for the show, but we were real so to speak. I think they were a bit embarrassed, but it was ok if not a bit funny. The lady selling the ice cream also complimented us saying how well dressed we were. I think we confused a few people. I quite enjoyed the show and in a strange sort of way I got a monkey of my back.

Friday  (Leeds)

Diana agreed to go through to Leeds with me to check out the scene and do some shopping. I am sorry to say I forgot about Diana's ribs. I think she was still in quite a bit of pain and walking her round Leeds was probably not a good idea and the seats on the train are not the most comfortable and the trains both ways were very busy.

The main pedestrian shopping centre is on Briggate and further down is the gay quarter which seems to be a safe area. We went in one bar the Viaduct which apparently is quite popular with lesbians. We did say hello to a group who came in. They were fine if not a bit loud. The barman gave us an overview of the area and the bars and clubs as relates to us. It seems like it might be a good night out.
It came time to get back to Manchester. The train was even busier. A bit like the tube at rush hour in London.
We got back ok and went to Eden for something to eat. Diana was going to head off home afterwards.
I'd had a great day out, but I did feel a bit bad for Di she seemed to be in a bit of pain.
Diana if you read this thank you for your help and support. You have helped more than you know. .
After Di left for home. I dropped my shopping off in the hotel room and decided to go for a couple of drinks before having an early night. It had been an intense three days. I ended up in Naps about 10pm where I met three women on a works night out. I got talking to them after an admirer kept at me and couldn't understand that I wasn't interested.
One asked if I was ok. I told them I was and it was a pain when these admirers couldn't take no for an answer and that I wasn't interested in men. They seemed surprised by this and asked if I just liked dressing up. I said yes, but its a bit more complicated than that. We got chatting and they asked me about the Village, also asked if I got a lot of problems with some men.I told them it only becomes a problem if they start grabbing you and then I stop being polite. They asked me if I would like to come with them, unfortunately I had to decline. it had been a long day and I was quite tired so I said goodnight and went back to the hotel.

Saturday  (A Wonderful Meal )    ,

I'd had a good sleep and after I got ready it was into the city center to do some shopping. First I had to get some breakfast, I went to Subway for a bacon sub and coffee. Now I was ready. L did my usual wandering round loads of shops seeing if anything caught my eye. I bought a top and another pair of jeans from New Look. In Dorothy Perkins a dress caught my eye, but I decided to think about it so i went for a coffee. I also texted Kate to find out what her and Mrs K's plans were for the evening.
Sitting in a cafe in the Arndale Centre watching people going by out shopping. I felt very relaxed, no stress all my worries had melted away. When I'm out I get these moments and I find it a beautiful time where everything is just right.
I got a text from Kate and then rang her. Kate suggested I come out to their home and we could have something to eat and then head of into the Village later on. I had been out to their home before and I was honoured to be invited back.
I said I would get the train in about an hour and then Kate would pick me up from the station.
I decided to buy the dress, see picture.

I was really pleased with it and wore it out that night in the Village.
I headed to the train station very happy with the my day shopping and caught the train.
Kate met me at the station and we drove to her house. Mrs K turned up a little later.
Kate cooked a lovely Chinese meal which we had with a really good home made wine. Sitting with Kate and Mrs K having a beautiful meal, chatting about various things I felt amazing.Two of my best friends who have really helped me come through a very frightening time. Kate was actually one of the first girls I met when I started going out in Manchester. I think we have all come a long way. I probably would never have got on a train if it wasn't for Kate's help and that opened up a whole new world for me. They are a wonderful couple who I can't thank enough.
They also gave me a Christmas present, which I won't open till Christmas and a card, Karen's first, which I will treasure.
The 2 Kate's got ready to go out to the Village. They dropped me off at my hotel so I could redo my make up and get changed.
Back at the hotel I got ready as quick as I could and wore my new dress. I felt like a million dollars.
We met up in Naps where we danced a lot. A wonderful night came to a close just after 3am.
We hugged and wished each other a Happy Christmas and New Year.I felt a bit sad, but hopefully I'll see them again early next year.

Sunday ( York )

I had a lie in and got up about 10am and then went to the train station about midday. I was torn between going to York or Sheffield. I decided on York as I had always wanted a look around.
Problems with the trains meant it would be about 45 minutes late.
On the platform in Piccadilly a very well dressed Irish lady asked me if I had a light for her cigarette.
I said I did but, it was illegal to smoke on the platform even though it's open. She seemed very annoyed but thanked me. About 15 minutes later she came back and told me she had spoken to one of the platform staff and managed to get a smoke. She asked me where I was off to and we had a chat. She wasn't in the least phased even with my voice. Her train came and she wished me a good day out.
My train eventually turned up. The journey was uneventful and I had bought a magazine to pass the time.
In York I had a wander round the Museum Gardens York Minster and the city centre which was packed.

It really was busy which was a shame. I think next time I'll go midweek when it's hopefully quieter. I did buy Sarah Mclachlan's Storytellers DVD.
The train back to Manchester was packed, but thankfully I got a seat after Leeds.
Back in Manchester I went for a meal in Villagios everywhere else was busy. A couple of drinks in Taurus an interesting chat which a very frightening looking bloke outside Via who told me to make sure I looked after myself because he thought I was a kind person .
I went back to the hotel. Another wonderful 5 days over. It had been a wonderful time, but as they say all good things come to an end.
It's been a strange year. Some amazing highs and very frightening lows. I've been in contact with some wonderful people, My friends have helped me see life is there to be lived and I try to the best I can.
To everyone who reads this blog, sorry I had to do another monster post.
Have a Happy Christmas and New Year 
Karen xxx