I got through April not to bad and managed some positive changes. I feel quite good.Unfortunately I haven't really been able to keep up with other blogs I follow having been quite busy. One thing I did do is wind up my Limbo Land blog as I felt it was just somewhere I was feeling sorry for myself with my health issues. It's been about a year since the MRI scan. I think I've come to terms with what the neurologist told me. As I said before I live with the unknown as everyone does, but maybe I am just more aware of it.
So now I am back to 2 blogs. This one will continue mainly as a sort of diary of my times out. The other one is just a bit of fun with my drawings which also act as a kind of stress relief.
My main aim is to try and stay as healthy as possible and enjoy myself. I've got a month yet before I see my friends again and I am so looking forward to seeing them.
There are somethings I have no control over, but I feel determined to give what I have my best shot and if my immune system decides to attack me, I'll deal with that and anything else the best I can.
One day at a time, try not to worry and enjoy life, that was what a doctor said to me last year and that's what I try to do.
Showing posts with label health. Show all posts
Showing posts with label health. Show all posts
Thursday, 6 May 2010
Monday, 31 August 2009
No Connection
I wrote whats below after I came back from a great time out in Newcastle and then following seeing the neurologist. It's me rambling about what I was told and me getting very nervous and probably very silly. I wasn't going to post this, but then thought why not? I might as well get it out of my system even if I do look a bit stupid trying to connect things that have no connection.
Karen 09/09/09
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I don't know what it is, but I guess most people feel uneasy in hospitals. I've had to visit one a few times this year. My last visit ended up with more questions than answers. I've got at least one more appointment to check up on my eye. During my last visit I was asked more questions to update my medical history. It was tempting to get out one thing about myself, but I thought what would be the point it has no relevence. It was unnerving when told that Optic Neuritis mainly affects women in their 20's. I was then told very quickly it does affect men, but is less common especially for someone my age. The ms diagnosis is on hold as I've only had one attack and the abnormalities on the MRI can't be confirmed as due to ms. At least they decided not to do the lumbar punture. Now I just watch and wait.
I looked on the net about ms and optic neuritis for some of the statistics and the odds of me being finally diagnosed with ms. On different sites they do vary, but all agree they are more common among women. Optic neuritis is a classic sympton of ms, but can be caused by something else, but then again no one knows what causes ms. Another thing I have been told I have a greater than 50% chance of developing ms, but in what form no one knows. This has been borne out by what I've looked at elsewhere.
My life seems so far to have had a series of unanswered questions. In the end I guess that is true for a lot of people. There is no point trying to connect unknowns that have never been connected in any shape or form. I did look at some intersex sites which told me nothing.The fact is men and women get optic neuritis and ms, being transgender has no bearing on it and me trying to connect them is a waste of time.
There are some questions I would like to ask, but would the answers improve things for me and anyway they probably wouldn't be answers just opinions.
I won't give up looking to see if there is anything that makes sense, but really life is a mystery to be explored and enjoyed where possible.
Karen 09/09/09
-------------------------------------------------------------------------------------------------
I don't know what it is, but I guess most people feel uneasy in hospitals. I've had to visit one a few times this year. My last visit ended up with more questions than answers. I've got at least one more appointment to check up on my eye. During my last visit I was asked more questions to update my medical history. It was tempting to get out one thing about myself, but I thought what would be the point it has no relevence. It was unnerving when told that Optic Neuritis mainly affects women in their 20's. I was then told very quickly it does affect men, but is less common especially for someone my age. The ms diagnosis is on hold as I've only had one attack and the abnormalities on the MRI can't be confirmed as due to ms. At least they decided not to do the lumbar punture. Now I just watch and wait.
I looked on the net about ms and optic neuritis for some of the statistics and the odds of me being finally diagnosed with ms. On different sites they do vary, but all agree they are more common among women. Optic neuritis is a classic sympton of ms, but can be caused by something else, but then again no one knows what causes ms. Another thing I have been told I have a greater than 50% chance of developing ms, but in what form no one knows. This has been borne out by what I've looked at elsewhere.
My life seems so far to have had a series of unanswered questions. In the end I guess that is true for a lot of people. There is no point trying to connect unknowns that have never been connected in any shape or form. I did look at some intersex sites which told me nothing.The fact is men and women get optic neuritis and ms, being transgender has no bearing on it and me trying to connect them is a waste of time.
There are some questions I would like to ask, but would the answers improve things for me and anyway they probably wouldn't be answers just opinions.
I won't give up looking to see if there is anything that makes sense, but really life is a mystery to be explored and enjoyed where possible.
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